International Spring School
International Spring School
15th March – 17th March 2020, digital on Zoom
The international spring school “Own Data. Systems Medicine between Sovereignty and Solidarity“ seeks to scrutinze the challenges of data ownership in systems medicine. The aim is to gain a more precise understanding of a possible right to own data and its impact in regard to the specific relevance of data in clinical settings. You can view the Schedule of the Spring School here.
Monday, 15th March
| 13.30 – 14.00 | Welcome, Opening and organisational information Matthias Braun |
| 14.00 – 14.40 | Presentation and Discussion Conceptual and Practical Challenges in Dealing with Data Ownership Matthias Braun |
| 14.40 – 15.20 | Presentation and Discussion Stewarding Children’s Data: Striking a balance between sovereignty and solidarity Jenny Krutzinna |
| 15.20 – 15.40 | Break / Sport Session |
| 15.40 – 16.40 | Keynote Lecture Data protection, data governance, and data sovereignty – differences and commonalities in varying approaches to regulating health data Steffen Augsberg |
| 16.40 – 17.00 | Break / Sport Session |
| 17.00 – 17.40 | Presentation and Discussion Data as contractual consideration Anne Wierling & Wulf Loh |
| 17.40 – 18.20 | Presentation and Discussion How to give sovereign consent? Data sovereignty and consent models for AI-driven data processing in the health context Hannah Bleher |
Tuesday, 16th March
| 13.30 – 14.10 | Presentation and Discussion “It’s not something you can take in your hands”. Swiss stakeholders’ perspectives on health data ownership Andrea Martani |
| 14.10 – 14.50 | Presentation and Discussion Applying Differential Privacy to Machine Learning on Sensitive Medical Data Franziska Boenisch |
| 14.50 – 15.30 | Presentation and Discussion Epistemologies of Asymmetry: Challenges to institutionalized solidarity from big data in systems medicine Darian Meacham |
| 15.30 – 15.45 | Break / Sport Session |
| 15.45 – 16.45 | Keynote Lecture and Discussion Political and Societal Views on Data Ownership Barbara Prainsack |
| 16.45 – 17.00 | Break / Sport Session |
| 17.00 – 17.40 | Presentation and Discussion Collaborative Decision-Making in Health-Related Data Sharing: a Comparative Analysis Ilaria Galasso |
| 17.40 – 18.20 | Presentation and Discussion Using subjective identities to think about medical and genomics research and practice – where do autonomy and communitarianism stand? Mavis Machirori |
Wesnesday, 17th March
| 13.30 – 14.10 | Presentation and Discussion Open data: governance, ethics, and trust – findings from an evaluation of the ODI’s Research and Development Programme Francesco Tava |
| 14.10 – 14.50 | Presentation and Discussion On digital twins and heavenly doppelgangers Yannick Schlote |
| 14.50 – 15.10 | Break / Sport Session |
| 15.10 – 15.50 | Presentation and Discussion On Contact Tracing Apps, Data, and Sovereignty Max Tretter |
| 15.50 – 16.30 | Presentation and Discussion A Duty to Share? Patrik Hummel |
| 16.30 – 16:50 | Break / Sport Session |
| 16.50 – 17.45 | Closing Remarks and Discussion Bringing the Conceptual Challenges back to the Clinic: What do we have learned so far? |
